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IU experts available to comment on Ehlers-Danlos syndrome in light of recent celebrity health revelations

November 4, 2019

INDIANAPOLIS -- Actress Lena Dunham recently shared that she has Ehlers-Danlos syndrome in response to a paparazzi photo of her walking with a cane. And last month, singer Sia and actress Jameela Jamil also revealed on social media that they have EDS. Indiana University's Dr. Clair Francomano, a world-leading expert in Ehlers-Danlos syndromes, is available to talk about the group of underrecognized connective tissue disorders, including what the symptoms are and what life is like for people living with EDS. For more information, contact Andrea Zeek at 317-985-6004 or

Clair Francomano

Ehlers-Danlos syndrome, or EDS; hereditary disorders of connective tissue; skeletal dysplasias.



Expert Bio

Dr. Clair Francomano has been involved in the care of individuals with Ehlers-Danlos syndromes throughout her career. During her years at the National Institutes of Health, she spearheaded a longitudinal study on the natural history of EDS that ran for over 20 years. She has served on the steering committee for the International Consortium on Ehlers-Danlos Syndromes and Related Conditions and as chair of the Committee on Classical Ehlers-Danlos Syndrome for the consortium since 2016. (more)

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Clair Francomano
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